My struggles with chronic pain and illness started at a young age. Early childhood in fact.
Back then, there was no internet, no support outside family members and the family’s doctor. And if you were unlucky to have an unsupportive family or doctor, you were very much alone.
As a kid, that was very hard.
You couldn’t easily find out about your illnesses, treatment options were not readily explained.
Usually, you were given an antibiotic, or told it’s “in your head” and to “just deal with it”, and sent away from the doctors.
I had to learn how to get myself through each day, manage my own chronic pain through my school life, and eventually stand up for my rights as both a patient and a person, deserving of treatment.
The age of easy information
These days, it’s so easy to find information about illnesses and diseases.
Too easy perhaps.
It’s too easy to catastrophize and believe you have the worst possible case.
Plus there is too much misinformation around poor health, people selling dodgy treatments and medications, promising miracle cures and diets that just cost money and don’t work. In the worst case, the medications are fatal.
Unfortunately, thinking critically and scientifically is not yet so common, so these dodgy information sellers can make their fortunes.
I want to help
Although I do not have a medical degree, I hope to provide others with a sensible, researched and experienced viewpoint.
I’ve been through (and am going through) these illnesses, treatments and therapies.
I’m still trying different things, learning more about my conditions.
And I hope I can help and support you!
This site will contain information about the illnesses and chronic problems I face, treatments and therapies I have tried (whether they worked or failed), and current research findings.
I’ll share my own daily struggles and triumphs, and you can know you aren’t alone.
Sometimes I will link to products I have used and love. I hope you also find them useful.
I may earn a small commission from linked products, but I promise only to share what has really helped me. (Read the full disclaimer)
Still – an appropriate word in many senses
Still can mean quiet, peaceful, as well as ongoing and not finished yet.
It’s the perfect word to describe people who are learning to live with chronic illness and chronic pain.
Some of my favourite posts on StillPain
- Why do I have chronic pain? – It’s not usually just because of bad luck.
- Procrastination therapy – How procrastination sabotages your health, whether you know it or not! I’m an expert procrastinator!
- Dealing with the ups and downs – How I try to manage the bad days better, and focus on the good days.
- Will endometriosis regrow – Debunking many myths that say that endometriosis is easily curable in many ways. Misunderstandings and misinformation about endometriosis is one topic that gets my blood boiling.
How can I help you?
What topics would you like to see here?
What questions do you have?
Would you like to share your story?
Please contact me, or leave a comment on any of the blog posts.
I read everything, and will respond to every one as my health allows!